| An analytic framework
to identify discrimination
To identify processes of discrimination and to develop adequate
strategies to combat discrimination in different situations and
phases of health care trajectories, four questions were answered:
1. To which aspect of health care is the problem related?
2. In which phase of the health care trajectory does the problem
occur? (where)
3. Where does the problem originate from?
4. What are the consequences of discrimination?
1. To which aspects of health care
is the problem related?
As discrimination is to a high extent the result of specific interactions
between migrants and health care employees (medical as well as
non-medical), six factors that influence these interactions can
be distinguished:
- Conditions in which the encounters take place
For instance, referral for admission of a Muslim woman to a non-segregated
ward or genital research by women performed by male doctors, absence
of interpreters or lack of time
- Concepts underlying the health care interactions
For instance the concept of autonomous self and internal locus
of control underlying psychotherapeutic practice versus a socio-centric
and community oriented world view of the patient;
- Practices, protocols and procedures guiding the encounter
For instance, intake procedures and ward protocols that don't
take into account family support;
- Attitude of migrant and health care employees
For instance, the general attitude of the health care employees
towards migrants (stereotyping) or a 'demanding' attitude of the
migrant;
- Behaviour of migrant and health care employees
For instance, a from the migrant's point of view improper or even
insulting way of addressing by the health care employee or from
a professional's point of view unfamiliar ways of expressing the
suffering by the migrant.
- Knowledge of health care problems and health care provision
of migrant and health care employee.
For instance, lack of cultural sensitivity and knowledge as the
health care employee concerns or insufficient knowledge of the
health care system as the migrant concerns.
There are many other issues that can be studied: A main problem
is the time budget (as perceived and told by health professionals
and immigrants), which may lead to interaction problems. Furthermore,
language problems: the professional who does not ask questions
to determine the specific needs of his patient or client (cultural
sensitivity/knowledge); attitudes like certain non-verbal behaviours
of professionals that sometimes may be an "insult" to
the immigrant,. Often such events are not even noticed because
they pass so quickly, but yet they will influence perceptions
of discrimination or exclusion. In this case a video camera would
be of use indeed, although the use of a camera is contestable.
2. In which phase of the health trajectory
does the problem occur?
Problems may occur long before the encounter of migrant and health
care takes place. Illness trajectories also encompass home care,
out-reaching, compliance, care in case of (temporary) disabilities.
Starting from the model of Goldberg and Huxley different stages
are to be distinguished:
- Health seeking behaviour
For instance, is the migrant population informed about health
promoting behaviour and available health care facilities?
- Recognition of health problems
For instance, are health problems in time and in an effective
way recognized by the system (lay referral system, employers,
teachers, general practitioners)?
- Referral to appropriate health facilities
For instance, are general practitioners aware of the referral
possibilities and capable of adequate referral?
- Admission to appropriate health facilities
For instance, do procedures, protocols and practices block admission
- Assistance in an effective way.
For instance, do medical professionals, therapeutic interventions
and accommodation of health care adequately take into account
of the migrants culture, their needs and intra-ethnic diversity?
Also gender differences, age, co-morbidity, multiple health problems
are aspects to reckon.
3. Where does the problem originates
from?
As to the origin of the problem five issues can be distinguished:
- general system issues related to the specific living conditions
of migrants, for instance legality of residence, employment, housing;
- general health care system issues effecting the population in
general, for instance lack of cooperation between different health
care facilities;
- specific health care issues effecting a specific migrant population,
for instance the availability of interpreters, accustomed health
care facilities, professional cultural competence;
- target group issues, for instance particular cultural defined
habits or life style, knowledge of the native language, degree
of openness of the ethnic community, degree of integration;
- health-problem related issues, for instance the migrants health
seeking behaviour, specific culture-bound diseases, definition
and meanings of health-problems (taboo, stigma).
4. What are the consequences of discrimination?
The consequences for migrants may vary from psychological distress
to under-of health care services and drop-out. This may cause
deterioration of the health situation and marginalizing of certain
parts of the population in a country. Discrimination may also
result in seeking alternative health care, medical shopping or
being referred wrongly
The members of the working group have hypothesised that the combat
against discrimination within the health care system implies operating
in the area where health care personnel and migrant communities
interact. These actors include: medical and paramedical professionals,
mediators, administration, single migrants and migrant communities.
The respective behaviours are determined by the cultural context
of origin, by practices, bureaucratic procedures and protocols,
by different conceptions of health, illness and perception of
the body, by former experiences, by the nature of obtained information.
How to map discrimination in health care
The first step to detect and map discrimination could be to pose
questions concerning relevant elements or processes which can
contribute to exclusion or lead to discrimination. The amount
of questions can be unlimited, but once can start with a dozen
questions, divided over five domains. In answering these questions
there are in every case four sub-questions.
Domain: Society Patient Interaction Professional Health Care
Focus: Rights Knowledge/ Communication Competence Cultural
Information Information diversity
Knowledge
Measuring discrimination
The working group has defined measurement of discrimination as
a qualitative practice that brings to the fore indicators of discrimination.
Because discrimination is a subjective experience and a sensitive
issue, it is problematic to measure discrimination in a quantitative
way. The main conclusion is that certain situations that are "prone"
to discrimination. There are
- endangering situations: impersonality of professional approaches
of immigrants
- bureaucracy: the formalised diagnostic process
- inadequate relationships between professionals: the referral
process based on cultural prejudices, and language problems.
The conclusion is that discrimination is not a matter of more
or less; every situation in the health care process has its own
specific danger of discrimination.
However, feelings of discrimination of immigrants are more frequent
and intense in certain situations:
- administration
- registration
- gynaecological treatment.
To measure discrimination, we can
ask the following questions:
Society: Is equal access enforced by law? Are patients able to
make use of health care facilities?
Patient: Is the patient aware of the existence of all health care
facilities? Has the patient adequate information? Is this information
provided by health care facilities?
Interaction: What are the communication problems according to
patients and professionals? Which measures are taken to improve
interaction (interpreters, mediators)?
Professionals: Are they trained in transcultural work? Are there
any measure to improve cultural competence?
Health care: Is there a policy aiming at managing cultural diversity
within the setting?
A common mechanism of discrimination is also that when a health
system is more bureaucratic, it will be more likely that health
workers discriminate. Discontinuity in health seeking processes,
assumptions on the side of health professionals of worldviews
of their immigrant clients will easily lead to exclusive and discriminatory
behaviour. Culture plays an important role in the sense that health
care professionals interpret attitudes and behaviour of immigrant
clients as cultural determinedand stereotypical. The effect is
discrimination.
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